Isla Kapeller may seem like an ordinary, happy child. But she suffers an incredibly rare condition that caused her to have...

family parenting rare disease

21st July 2020 7:07 AM

‘You can't stop when you’ve got three little people depending on us for what they need’. T

bestofmackay gofundme kia carnival mackay city auto group maeri satinie moranbah rare disease

11th July 2020 9:07 AM

Watch as Moranbah’s Linsi and Jodi Satinie and their children Emmy, 6, Harlen, 4, and Maeri, 2, see their new vehicle for...

mackay maeri moranbah rae wilson rare disease satinie wieacker-wolff syndrome

10th July 2020 1:07 AM

An 11-week-old Toowoomba baby has been diagnosed with a rare condition that his mother called a 'miracle'.

rare disease toowoomba hospital toowoomba miracle baby

02nd April 2020 5:04 AM

Four tablets and one needle a day is what it takes to keep 14-month-old Harvey Swinton healthy and happy.

panhypopituitarism raising awareness rare disease

26th Nov. 2019 5:11 AM

Four Toowoomba men have recently completed the 800km Captain’s Ride to raise money for children with rare diseases.

charity bike ride rare disease steve waugh foundation

18th Nov. 2019 1:11 PM

A doctor has been dismissed after a baby boy was born without a nose, eyes and part of his skull missing

baby born birth defect parents rare disease

25th Oct. 2019 12:10 PM

Six weeks ago Kat Hammond's baby girl was found delirious and lying in a puddle of sweat. That morning began the Mackay...

editors picks kat hammond mackay health rare disease ronald mcdonald house royal children's hospital

24th Sept. 2019 12:09 PM

A Gold Coast family is mourning the loss of their eight-year-old daughter who “grew wings and flew to heaven” after her...

editors picks rare disease tribute

22nd July 2019 5:07 AM