Erin’s on a mission

ERIN Louise Povey is in the middle of a 1000-kilometre identity crisis.

Dressed as a butterfly, she is often confused as a bee and most of the people she talks to have never heard about the disease she represents.

Lupus, a chronic auto-immune disease, is said to be one of the most prevalent and undiagnosed health disorders among Australians.

Yet as Erin has found on her trek between Brisbane and Sydney, very few people know about it.

“This is not just a long walk, this is all about raising awareness for this little-known but widespread disease,” she said at The Butterfly House yesterday.

“Hopefully this is where it all starts for Lupus in Australia as a nationally recognised cause.”

Erin says while there are a handful of organisations dedicated to the disease, Lupus doesn’t have a national body nor does it have a fundraising gimmick. Her own costume is based on the international symbol for Lupus – an orange butterfly.

Maybe through the feet and wings of this determined walker, public awareness of Lupus will grow.

“When I was first diagnosed I had never heard about Lupus before and after six months of denial and dismissing the disease, I’ve finally come to terms with it and want to help others recognise what it is.”

Erin is almost halfway through her fundraising walk, which started on International Lupus Day on May 10.

To support her go to or visit the NSW Lupus website.

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