A race against time to find a cure
IT WAS worth the pain of running up Heartbreak Hill for Moonee Beach's Angela Lownie.
A finisher in the City2Surf at Bondi Beach on Sunday, Angela raised more than $10,000 for health care and research in Huntington's disease.
Beaming at the finsh line she chose the Westmead Medical Research Foundation as her nominated charity, with whom she is aiming to raise $10,000 for over the next two years.
This fundraising will enable Australian doctors and nurses to attend the next World Congress on Huntington's disease, a conference that inspires staff and stimulates research into both care and cure.
"Our fund started with a donation in memory of a beloved mother and wife whose life was cut short a few years ago," Angela said.
"She is one of over 200 whose faces or stories are still in my mind from time to time.
"Each was a character in their own right and lived their life accordingly. I consider it a great privilege to have been a small (sometimes large) part of their journey."
There is no cure for Huntington's disease.
It is usually characterised by involuntary movement and intellectual, emotional and behavioural problems. HD cruelly still takes affected people in their midlife and during the long course of the illness friends and family lose that person as they knew them, as gradually all functions are affected.
Scientists internationally are making much progress in understanding the bodily processes and Angela believes that treatments to halt the progress or prevent it staring are quite close now.
We have already helped several staff attend conferences with others working in this specialised field - but our vision is for ongoing participation. Angela says "The professionals I support are a great group of clinicians each expert in
Make a tax deductible donation to Angela's cause by calling 1800 639 037 or via the link.