MOST parents take for granted the ability of their children to play outside.
For young Monroe Mills of Nambucca Heads, New South Wales, going outside in the sun ends in extreme pain and regular hospital visits.
"Monroe suffers from a rare form of eczema that is known as photo-aggravated eczema," her mother Sarah Mills said.
"This means any ultra violet exposure leaves her in pain for days.
"Monroe has battled this condition since birth.
"She has never slept a full night in her life and has spent more time in hospital in a year than most people have in their lives."
Monroe has also been diagnosed with an allergy to the sun known as solar urticaria.
The disease is rare, particularly in someone of Monroe's tender age and despite medical attempts to find permanent relief, sadly there is no cure.
For now, wet wrapping is the only therapy that keeps Monroe out of hospital for extended periods, however it's only a short-term fix and means she must wear a body stocking from head to toe every time she leaves the house.
A Miracle for Monroe fundraising campaign is underway to help Monroe's family purchase a hydrotherapy bath.
It will give Monroe a chance to shine beneath the suffering and discomfort.